ALS C.A.R.E.
CAALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.

ALS Connection Registry
Baltimore, MDThis MDA funded, patient-driven website collects data from ALS patients in North America. The data is used for ongoing ALS research. The ALS Connection Registry is coordinated by The Forbes Norris MDA/ALS Research Center at California Pacific Medical Center and the San Francisco Coordinating Center.

ALS Hope Foundation
This colorful website describes the work of Dr. Terri-Heiman Patterson and her amazing colleagues in the ALS Hope Foundation, centered at Drexel University in Philadelphia PA.

ALS Research Group
Information about the ALS Genetic Repository Project, advocacy slides and other initiatives from this group of North American ALS/MND researchers and ALS Clinic Directors.

ALS/SLA Society of Canada
Research and patient information

Clinical Trials Summary: from the NIH
The U.S. National Institutes of Health, through its National Library of Medicine, has developed this clinical trials sumamry to provide health professionals, patients, family members and members of the public current information about clinical research studies.

Duke University ALS Clinic
This lively and entertaining site shows the ALS clinical team, the ALS advocacy work, and the ALS research being conducted at the Duke ALS Clinic in Durham NC.

International Alliance of ALS/MND Association
The Alliance functions primarily as a forum for the exchange of information on all aspects of the disease, research and management of care as well as the provision of support through networking and sharing the development of ideas on good practice. Its developing role is the advancement of the patients' views in discussions affecting the well-being of people with ALS/MND.

The Muscular Dystrophy Association
The Muscular Dystrophy Association website features news and information on ALS and other neuromuscular diseases, including The MDA/ALS Newsmagazine, a chat room, clinical trials listings, research news, and other researcher and patient services and resources. Research grant inquiries should be directed to Sharon Hesterlee, Ph.D., MDA's Director of Research Development at shesterlee@mdausa.org. All other inquiries (including services, equipment purchase, support groups, MDA ALS Clinics, educational seminars, etc) can be directed to Annie Kennedy, Director of the ALS Division, at akennedy@mdausa.org.

Neuromuscular Disease Center
This attractive site is maintained by the Washington University School of Medicine, St. Louis, MO. It contains much basic information about neuromuscular diseases, including ALS, with links to other sites including MEDLINE.

Northeast ALS Consortium
Informative site detailing the activities of one of the largest ALS trial groups in the world.