| General Information
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Research and Trials
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Chicago - The Lois Insolia ALS Center of the Neuromuscular Disorders Program
- Northwestern University Medical School
Department of Neurology, Tarry 13-715
Northwestern University Medical School
303 East Chicago Avenue
Chicago, Illinois 60611
- Phone: 312-503-4737 (see list below)
- Fax: 312-908-0865
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- Program Director: Teepu Siddique M.D.
- Neurologists:
- Teepu Siddique M.D., Scott Heller M.D., Robert Sufit M.D.
- Other medical specialties:
- ALS, familial ALS, other motor neuron disease
The clinic has a multi-displinary approach to management of
motor neuron disease for the patient and family. Team members include
social worker, ocupational therapist, speech therapist, orthotist,
genetic counselor, home liason nurse and clinic nurse, as well as
neurologists with interest and expertise in neuromuscular disease.
Support groups and community referrals provided.
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- For information and appointments contact the Nurse Coordinator, Jennifer Armstrong, RN
- Phone: 312-695-5886
- Fax: 312-695-5747
- E-mail: jarmstrong@nmff.org
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- For general information in the genetics of ALS: Lisa
Dellefave, MS
- Phone: 312-503-0154
- E-mail: l-dellefave@northwestern.edu
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- For general information about ALS and community resources contact: The Les Turner ALS Foundation
- E-mail: info@lesturnerals.org
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- Research emphasis:
- Tarry 13-715, 300 East Superior, Chicago IL 60611
Basic research is focused on the genetics of ALS, both in familial (FALS)
and sporadic disease (SALS). Current investigation includes examination of
the role of SOD1 in ALS, as well as the search for additional causative
genes in both dominant and recessive FALS. We continue to enroll families
with FALS as they become available. In addition,we are actively recruiting
families of SALS patients to investigate predisposing genetic factors in
sporadic cases of ALS. The study requires a blood sample from SALS patients and their
parents. If both parents are not available, samples from one parent and
patient's siblings may be used. Blood tubes are provided and shipping
costs paid.
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- Contact person: Nailah Siddique RN, MSN or Lisa Dellefave MS
- Phone: 312-503-2712 (Nailah) or 312-503-0154 (Lisa)
- Fax: 312-908-0864
- Email: nsiddique@nwu.edu or l-dellefave@northwestern.edu
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- Clinical trials in progress:
- The intrathecal BDNF study is now closed.
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- Record last reviewed:
- 29 Mar 2005
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Chicago - The University of Chicago MDA/ALS Clinic
- The University of Chicago
5841 S. Maryland Avenue
Chicago, Illinois 60637-1463
- Phone: 773-702-9089
- Fax: 773-702-9076
- Website: http://ucneurology.
uchicago.edu
- Appointments (ALS and Ataxia Patients):
- Joumana Fawaz-Baroody, RN, Clinic Coordinator for the
Ataxia and ALS clinics
Department of Neurology,
The University of Chicago,
5841 S. Maryland Avenue, MC 2030
- Phone: 773-702-7852 (ALS patients)
- Phone: 773-702-5545 (Ataxia patients)
- Fax: 773-834-7801
- E-mail: jfawaz@neurology.
bsd.uchicago.edu
- Appointments (Other Adult MDA Patients):
- Kimberly Jones
- Phone: 773-702-5971
- E-mail: Kimberly.Jones@uchospitals.edu
- Appointments (Pediatric MDA patients):
- Lee Brauer
- Phone: 773-702- 6394
- E-mail: lbrauer@neurology.
bsd.uchicago.edu
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- Directors:
- Raymond P. Roos M.D.
- Betty Soliven, M.D.
- Co-Director:
- Ewa Chelmicka-Schorr M.D.
(pediatric neurologist)
- Other neurologists:
- Christopher M. Gomez, M.D., Ph.D.
- Kourosh Rezania M.D.
- EMG-neuromuscular fellow
- Specialty:
- ALS, SMA, myasthenia gravis, Friedreich's ataxia, neuropathy, myopathy and muscular dystrophies
- Other medical specialties:
- The clinic has a multidisciplinary approach to the management of motor neuron disease and other neuromuscular diseases and ataxia. Team members include a clinic nurse, social worker, orthotist, genetic counselor. We have a close interaction with speech and swallow specialists as well as pulmonologists.
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- Research emphasis:
- Pathogenesis of ALS, neuropathy, and ataxias: molecular mechanisms and animal models.
- Other basic and clinical research studies in neuromuscular diseases.
- Clinical trials in progress:
- High dose coenzyme Q10 trial in ALS
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- Contact person: Elizabeth Shaviers
- Phone: 773-702-6221
- E-mail: eshavier@neurology.bsd.uchicago.edu
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- Record last reviewed:
- 24 Jul 2006
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Chicago - Rush ALS Clinic
- Affiliation: Rush Presbyterian St. Luke's Medical Center
- 1725 W. Harrison, Suite 1118
Chicago, Illinois 60612
- Phone: 312-942-6121 (Jon Steinhagen-appointments)
- Fax: 312-942-2380
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- Medical Director:
- Julie Rowin, M.D.
- Specialty:
- Neuromuscular disease
- Other diseases treated:
- MDA clinic, MG, neuropathy, dermatomyositis, IBM
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- Clinical trials:
- Respiratory Effects of Enteral Nutritional Support in ALS;
awaiting IRB approval for creatine study
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- Contact person: Judy Richman, RN, BSN
- Phone: 312-563-2759
- Fax: 312-942-2380
- Email: Judith_G_Richman@rush.edu
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- Record last reviewed:
- 07 Nov 2002
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