Winston-Salem - The ALS Center of Wake Forest University Baptist Medical Center
- Department of Neurology
Medical Center Boulevard
Winston-Salem, North Carolina 27157-1078
- Phone: 336-716-4101
- Fax: 336-716-7794
- E-mail: jcaress@wfubmc.edu
- Web Site: http://www.wfubmc.edu/neurology/
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- Medical Director of Clinic:
- James B. Caress, M.D.
- Specialties:
- Neurology and Neuromuscular Disorders
- Other Information:
- ALS Center - ALSA Certified
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- Research emphasis:
- Biomarkers in ALS
- Heat shock proteins in ALS
- Clinical trials in progress:
- A multi-center study of Minocycline in Amyotrophic Lateral Sclerosis.
- Clinical trial of Ceftriaxone in subjects with Amyotrophic Lateral Sclerosis.
- Amyotrophic Lateral Sclerosis Research Group (ALS RG): Collection of data and biomaterial for repository banking to facilitate research into the etiology of als and related motor neuron diseases.
- A prospective survey of cramps and fasciculations in ALS.
- Electrical impedance myography as an outcome measure in ALS clinical trials.
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- Contact person: Theresa Johnston-Crews, RN, BSN, MBA
- Phone: 336-716-2323
- Fax: 336-716-9489
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- Record last reviewed:
- 28 Jul 2006
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Charlotte - MDA/ALS Center at Carolinas Medical Center
- Carolinas Medical Center
PO Box 32861
1010 Edgehill Road
Charlotte, North Carolina 28232-2861
- Phone: 704-446-6ALS(6257) or 1-800-924-7620
- Fax: 704-446-6255
- E-mail: jrosenfeld@carolinas.org
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- Medical director:
- Jeffrey Rosenfeld, M.D., Ph.D.
- Specialties:
- Pulmonology, gastoenterology, nutrition, occupational therapy,
physical therapy, respiratory therapy, social work, speech therapy,
nursing, orthotics, wheelchair equipment specialists, home health specialist
- Other information:
- The Carolinas ALS Center offers a major multi-disciplinary clinic approach with unique resources available for treatment of patients and assistive devices. The initial evaluation is completed in two days with each patient being evaluated by the entire ALS Team (12-14 members). Once the patient is diagnosed, they are followed every three months in a full day clinic where the entire ALS Team again assesses them. Recommendations are made for treatment modifications or suggestions for inclusion in an ongoing clinical trial. Assistive devices for gait or speech are made available that day or arrangements are made for delivery. Abundant patient education materials are available. The Center also maintains a network of patient support groups throughout North and South Carolina.
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- Clinical trials:
- Minocycline in ALS
- Creatine in ALS
- Neurodex for emotional lability
- Sanofi 1923,2941
- Incentive spirometry in ALS patients
- Sleep disorders in patients with motor neuron disease
- Cocktail drug therapy in Motor Neuron Disease
- The Center has a large basic science laboratory effort focused on:
- Discovery of early diagnostic biomarkers
- Mitochondrial dysfunction in motor neurons
- Sertoli cell implantation in motor neuron disease
- New cocktail drug therapy in treatment of motor neuron disease
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- Contact: Kay Strand, Anne Blythe RN, or Ruth King
- Phone: 704-446-6ALS(6257) or 1-800-924-7620
- Fax: 704-446-6255
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- Record last reviewed:
- 09 Jul 2006
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Durham - Duke University Medical Center MDA/ALS Clinic
- PO Box 3333
Box 3333 Duke University Medical Center
932 Morreene Road
Room 201
Durham, North Carolina 27710
- Phone: 919-668-2839
- Fax: 919-668-2901
- E-mail: bedla001@mc.duke.edu
- Website: http://www.dukealsclinic.com
- Medical director:
- Richard S. Bedlack M.D., PhD
- Specialties:
- Neurology/neuromuscular diseases
- Other diseases/conditions:
- SMA, Post-Polio Syndrome, Multifocal Motor Neuropathy, CIDP, CMT
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- Contact: Richard S. Bedlack M.D., PhD
- Phone: 919-668-2839
- Fax: 919-668-2901
- E-mail: bedla001@mc.duke.edu
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- Record last reviewed:
- 16 May 2006
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