ALS Research Centers - New York

General Information	Research and Trials
New York - Eleanor and Lou Gehrig MDA/ALS Research Center Neurological Institute Columbia University Medical Center 710 West 168th Street Box 107 New York, New York 10032 Phone: 212-305-1319 Fax: 212-305-8398 Email: alscenter@columbia.edu Website: http://www.columbiaALS.org/ Medical Director: Hiroshi Mitsumoto, M.D. Associate Director: Paul H. Gordon, M.D. Science Director: Serge Przedborski, M.D., Ph.D. Founder: Lewis P. Rowland, M.D. Specialty: ALS Neurology/neuromuscular disease Quality of life Other medical specialties: Pulmonary Medicine Rehabilitation Medicine Physical Therapy Speech Therapy Occupational Therapy Multidisciplinary management of ALS Other diseases/conditions treated: All neuromuscular diseases such as peripheral neuropathy, motor neuropathy, inclusion body myositis, myasthenia gravis, muscular dysyrophy, spinal muscular atrophy.	Research emphasis: The diagnosis, treatment and research into the causes of ALS. Special emphasis on neuropathological findings, SOD-1 mutations in transgenic mice, the study of biomarkers, clinical trials and the histopathology of ALS dementia. Current clinical trials: Clinical trial of minocycline in ALS. Clinical trial of high dose Co-Q10 in ALS. Combination drug selection trial in ALS. Nutrition in ALS. Modafinil for treatment of fatigue in ALS patients. Multiple dose study to evaluate the safety, tolerability and pharmacokinetics of AEOL 10150 in ALS. Genetic & environmental epidemiology of ALS. Collection of data and biomaterial for repository banking to facilitate research into the etiology of ALS and related motor neuron diseases. Oxidative stress in ALS. Investigation of the possible association of mutations and polymorphisms in wolframin with ALS. Contact person: Gabriela Harrington, RN, BSN Clinical Research Nurse Phone: 212-342-3728 Fax: 212-342-5530 Email: gharrington@neuro.columbia.edu Record last reviewed: 10 Jul 2006
Syracuse - MDA/ALS Center at SUNY Upstate Medical University State University of New York Health Science Center Department of Neurology SUNY Health Science Center 750 East Adams Street Syracuse, New York 13210 Telephone: 315-464-2480 Fax: 315-464-7328 E-mail: shefnerj@upstate.edu Medical Director: Jeremy M. Shefner, M.D., PhD Specialty: Neurology/Neuromuscular Disease Other medical specialties: Pulmonary medicine, speech therapy, occupational therapy, physical therapy. Other diseases/conditions treated: All neuromuscular diseases including post-polio syndrome, motor neuropathy, inflammatory myopathies, myasthenia gravis, inflammatory and non inflammatory neuropathies.	Research emphasis: Physiological studies of motor neuron disease in animal models of familiar ALS as well as in patients. Neurovirologic studies of polio and the post polio syndrome. Clinical trials in progress: Celebrex in patients with ALS Creatine in patients with ALS Contact person: Jeremy M. Shefner, M.D., PhD Phone: 315-464-2480 Fax: 315-464-7328 E-mail: shefnerj@upstate.edu Record last reviewed: 30 May 2006
New York - Beth Israel ALS Center Beth Israel Medical Center 10 Union Square East, Suite 2Q New York, New York 10003 Telephone: 212-720-3050 Fax: 212-619-7409 E-mail: versenyi@als-ny.org Medical Director: Stephen Scelsa, MD Specialty: Neurology/Neuromuscular Disease/Electromyography Other medical specialties: Physical Therapy, Occupational Therapy, Speech Pathology, Nutrition, Assistive Technology, Social Work, Pulmonary Medicine Other diseases/conditions treated: Primary Lateral Sclerosis, Progressive Spinal Muscular Atrophy, Progressive Bulbar Palsy Other Information: Certified ALSA Center	Research emphasis: Research regarding clinical management and therapeutic drug trials in ALS. Current clinical trials: Prospective, multi-center trial studying early vs traditional use of BiPAP Pathogenesis of ALS studying novel, neuronal surface protein End of Life Care for People with ALS Indinavir - Clinical Study in People with ALS Contact person: Andrea Versenyi, CSW, Center Coordinator Phone: 212-720-3050 Fax: 212-619-7409 E-mail: versenyi@als-ny.org Record last reviewed: 18 Jun 2002
Albany - ALS Regional Center St. Peter's Hospital 315 S. Manning Blvd. Cusack 6-2 Albany, New York 12208 Telephone: 518-525-1629 Fax: 518-525-6800 E-mail: alsregionalcenter@ stpetershealthcare.org Medical Director: Dr. Jonathan Cooper Other diseases/conditions treated: Primary Lateral Sclerosis, Progressive Supranuclear Palsy and Progressive Bulbar Palsy	Contact person: Karen Spinelli, RN BS, ALS Coordinator Phone: 518-525-1629 Fax: 518-525-6800 E-mail: alsregionalcenter@ stpetershealthcare.org Record last reviewed: 18 Jun 2002
New York - The MDA/ALS Center at Mount Sinai Hospital and Medical Center Mount Sinai Medical Center One Gustave Levy Place Annenburg 14-94 New York, New York 10029 Telephone: 212-241-7317 Fax: 212-987-1310 E-mail: mda.als@mssm.edu Website: http://www.mssm.edu/neurology/neuromuscular/als Directors: Dale J. Lange, M.D. C. Warren Olanow, M.D., F.R.C.P Specialty: ALS, Neurology/Neuromuscular Disease, EMG/Motor Neuron Counts, Post-Polio, Speech Disorders Other medical specialties: Rehabilitation Medicine, Physical Therapy, Speech Therapy, Occupational Therapy, multidisciplinary management of ALS Other Diseases/Conditions Treated: Primary Lateral Sclerosis, Motor Neuropathy, Lower Motor Neuron Disease, Spinal Muscular Atrophy, Post-Polio Syndrome, Bulbar Palsy	Research emphasis: The diagnosis of ALS and its relationship to motor neuropathy and systemic cancer; Cerebrospinal fluid (CSF) markers of ALS progression; animal models of ALS; electrodiagnostic techniques; nerve and muscle biopsy Current clinical trials: IVIG in lower motor neuron syndromes (motor neuropathy) Multicenter study using the VEST in ALS patients CSF Markers of ALS Contact person: Dale J. Lange, M.D. Phone: 212-241-8674 Fax: 212-987-7363 Record last reviewed: 30 May 2006
Rochester - MDA/ALS Center at the University of Rochester Medical Center P.O. Box 673 601 Elmwood Avenue Rochester, New York 14642-8673 Telephone: 585-275-2559 Fax: 585-273-1255 E-mail: charles_thornton@urmc.rochester.edu Director: Charles A. Thornton, M.D. Specialty: ALS	Research emphasis: ALS Current clinical trials: NA Contact person: Charles A. Thornton, M.D. E-mail: charles_thornton@urmc.rochester.edu Record last reviewed: 30 May 2006