ALS Research Centers - Texas

General Information	Research and Trials
San Antonio - University of Texas Health Science Center MDA/ALS Research Center 4647 Medical Drive San Antonio, Texas 78229 Clinic site address: University Hospital 4502 Medical Dr. San Antonio, Texas 78229-4493 Director: Carlayne E. Jackson, M.D., Professor, Medicine/Neurology (Telephone: 210-567-1945)	Contact person: Coley Claybaugh Phone: 210-650-3184 E-mail: cclaybaugh@mdausa.org Record last reviewed: 11 Jul 2006
San Antonio - The South Texas ALS Clinic at Reeves Rehabilitation Center 4502 Medical Drive San Antonio, Texas 78229 Contact person: Renee Holmes Phone: 210-592-0113 Fax: 210-592-0202 E-mail: barefield@uthscsa.edu Alternate e-mail: neuromuscularut@uthscsa.edu Director: Carlayne E. Jackson, M.D., Professor, Medicine/Neurology (Telephone: 210-567-1945) The clinic is certified by the ALS Association.	Clinical trials: A multicenter, dose ranging safety and pharmacokinetics study of Arimoclomol in ALS Collection of data and biomaterial for repository banking to facilitate research into the etiology of ALS and related motor neuron diseases Resequencing the variable human genome in sporadic ALS: A necessary prelude to diagnostics and drug development Clinical trial of high dose CoQ10 in ALS Early treatment of ALS with nutrition and NIPPV A randomized study of the safety and efficacy of botulinum toxin bype B (Myobloc) for sialorrhea in ALS Contact person for clinical trials: Pamela Kittrell, RN, MSN Phone: 210-567-1979 Fax: 210-567-1982 E-mail: Kittrellp@uthscsca.edu Record last reviewed: 11 Jul 2006
Dallas - MDA/ALS Center at the University of Texas University of Texas Southwestern Medical Center Department of Neurology 5323 Harry Hines Blvd. Dallas, Texas 75235-8897 Physical Street Address: 5161 Harry Hines Blvd. Dallas, Texas 75235 Phone: 214-648-2871 Fax: 214-648-7992 E-mail: jeffrey.elliott@utsouthwestern.edu Director: Jeffrey L. Elliott, M.D. Other medical specialists: Research nurses, physical medicine and rehabilitation physician, physical therapist, equipment specialist, psychologist, social worker, speech therapist, respiratory therapist, nutritionist, and the MDA patient services coordinator. Other information: The center is active in the Western ALS group, and is enrolling patients in the ALS C.A.R.E. (Clinical Assessment, Research, and Education) Program. The clinic also has a library available for the patients and families, with a variety of books, videos and other resource materials. The MDA/ALS Center of Dallas is one of the 15 comprehensive care and research centers for ALS recognized nationally by the Muscular Dystrophy Association.	Clinical trials - now enrolling: Phase III Gabapentin Study Clinical trials - current: Phase III Gabapentin Study, Extended Access Program for BDNF (brain-derived neurotrophic factor), Extended Access Program for IGF-1 (Myotrophin, Insulin-like growth factor). Also, clinical trials in Spinal Muscular Atrophy (SMA), another motor neuron disease. Clinical trials - completed: Preliminary gabapentin study, CNTF (ciliary neurotrophic factor), BDNF (brain-derived neurotrophic factor). Contact person: Kimberly N. Cherry, RN, BSN, ALS Clinical Research Coordinator Phone: 214-648-8668 Record last reviewed: 30 May 2006
Houston - Baylor College of Medicine Baylor College of Medicine Department of Neurology 6550 Fannin, Suite 1801 Houston, TX 77030 Phone: 713-798-7411 Fax: 713-798-1486 Medical Director: Y. Harati, M.D., F.A.C.P. Other specialists: J. Kwan, M.D.	Contact person: Y. Harati, M.D. or Claire Sweatt MacAdam, PT, NCS Phone: 713-798-7411 or 713-798-5694 Fax: 713-798-1486 Record last reviewed: 19 Dec 2006
Houston - Nerve and Muscle Center of Texas Houston Neurocare and St. Lukes Episcopal Hospital/Houston 6624 Fannin #1670 Houston, Texas 77030 Phone: 713-795-0033 Fax: 713-796-9302 E-mail: ataher@aol.com Medical Director: Aziz Shaibani, M.D., FACP Specialty: Neuromuscular disorders Other diseases treated: Diabetic neuropathy, myopathies	Clinical trials: ALS clinical trials only. Contact person: Aziz Shaibani Phone: 713-795-0033 Record last reviewed: 18 Jun 2002
Houston - Methodist Neurological Institute MDA/ALS Research and Clinical Center Department of Neurology 6560 Fannin St., Suite 802 Houston, Texas 77030 Phone: 713-441-3760 Fax: 713-793-7271 Medical Director: Stanley H. Appel, M.D. Director, MDA/ALS Research and Clinical Center Chair, Department of Neurology Methodist Neurological Institute Professor of Neurology Weill Medical College of Cornell University Specialty: Neurodegenerative/neuromuscular diseases Other information: The MDA/ALS Center at Baylor was formed in 1983 as the first multi-disciplinary ALS clinic in the country. There are over 25 clinic team members, including 4 neurologists, a pulmonologist, 4 psychologists, 2 physical therapists, 2 occupational therapists, 2 speech pathologists, a dietitian, respiratory therapist, social worker, a nurse Clinic Coordinator, a physician assistant Certified Clinical Research Coordinator, as well as voluntary attorneys and a financial planner to assist patients at every clinic.	Research emphasis: ALS Clinical trials: ALS clinical trials Contact person: Peggy Allred, Clinic/Research Coordinator Phone: 713-441-3760 Fax: 713-793-7271 Record last reviewed: 30 Nov 2005
Dallas - ALS/Motor Neuron Disorder Clinic at Texas Neurology, P.A. Texas Neurology, P.A. 6301 Gaston Avenue Suite 400 West Tower Dallas, Texas 75214 Phone: 214-827-3610 Fax: 214-824-1054 HIPAA Fax: 214-821-4017 Website: http://www.texasneurology.com/alscenter Medical Director: Daragh Heitzman, M.D. Specialty: ALS Other Motor Neuron Disorders such as Primary Lateral Sclerosis (PLS) and Progressive Muscular Atrophy (PMA) Other medical specialists: Alan Martin, M.D. Other information: Sponsored by The Muscular Dystrophy Association (MDA). The ALS Clinic at Texas Neurology, P.A. is a multidisciplinary clinic meeting monthly. Patients are seen by neurologists, physical therapist, occupational therapists, speech therapists, a social worker, neuropsychologists, dieticians, and the MDA representative. The purpose of the clinic is to 1) provide comprehensive care and 2) to participate in clinical drug trials.	Research emphasis: ALS and other Motor Neuron Disorders. Currently a participant in the ALS C.A.R.E. Program. Clinical trials: ALS and other Motor Neuron Disorders Contact person: Donna Newding, RN Phone: 214-827-3610 Fax: 214-821-4017 E-mail: alscoordinator@texasneurology.com Record last reviewed: 06 Oct 2005